Sometimes you just have to stop and be thankful for life having different plans for you, than I had planned for myself. I have been blessed with a miracle. Being a parent to a baby born with a disability, in a nutshell is –
a circle of emotions on repeat.
At first I felt awful and blamed myself for the diversity she will face in her life, I wasn’t sure I could adapt to parent her and cater her needs, but motherhood is such a powerful beautiful thing. I’ve learnt to cherish and admire the person she is becoming, not who I thought she would be, whilst developing in the womb and fantasising how her life will be (what wasn’t meant to be.)
I feel lucky that In fact she has turned out to be the teacher of my life, turning me into the best version of myself.
My aim in writing this blog, is to provide comfort and reassurance to young, new, experienced mums who discover their baby has a form of disability, like i did myself.
I will cover in detail the beginning of our journey. I just wish I had something inspiring, comforting and reassuring to read after being told my daughter had failed three newborn hearing screenings, facing a life of profound deafness. I laid there with my less than 48 hours old daughter, sobbing in my cubicle, clutching her tiny 5lb 2oz body to my chest feeling to wrap her in every ounce of comfort and protection I could provide.
Gently whispering, ‘I’m so sorry’…
Throughout this blog you will notice I am a FIRM believer in this quote:
‘There is ability, in every disability’.