How being deaf has taught me not to give a f*ck. This time 4 years ago, not a doubt crossed my mind that this little girl inside my tummy could lead me onto a journey of raising a deaf child. A fabulously sassy deaf child may I add. This brings me to nearly 4 years,Continue reading “BeingDeaf.”
Label of identity. As we’re consumed by the perfection of a generation that has formed by social media, we are surrounded by forms of identity. How we portray an identity, how we truly identify ourselves and how we are identified by others perceptions. How do I cope with a diagnosis for my daughter? Others thoughtContinue reading “LabelOfIdentity”
LADD SYNDROME. Did you know that these little cute tiny peggy teeth are a autosomal dominant characteristic of LADD syndrome? Whilst this symptom will present with some problematic issues when she’s older, right now we are taking each appointment as it comes because no dental work will begin until early teens. Our beautiful little Livy.
Just like parenting in the SENHOOD, it comes with no instruction manual and you’ll find that any child with the same diagnosis is extremely different to your child. Don’t let the staircase overwhelm you.Just take one step at a time.
Introducing Livy to something new! Since Tuesday we have been given a communication book by her SALT therapist. A new project to both Livy and I. I’m still trying to educate myself on PECS and the best way moving forward with this. Her book is quite intimidating and very busy with lots of pictures/symbols. ButContinue reading “PECS”
Talking about my own journey with hearing loss is still something I struggle to admit to. It’s not something I feel freely comfortable about. And whilst I realise the irony of raising a daughter to be proud and accepting of her deafness. She is really the one reason that’s leading me on a journey toContinue reading “Acceptance.”
Now this is a story all about how these pink aids life got flipped turned upside down and I’d like you to take a minute just sit right there I’ll tell you how they became the missing aids of a palace called Blenheim. In Northamptonshire born and raisedIn Livys ears is where I spend mostContinue reading “TaleOfTheMissingAids”
For every parent in the senhood, we build a strong exterior to face the battles, not only for our children but ourselves too. Livy does not only face profound deafness, she has multiple complex health conditions which aren’t always as visible. The happy, bold fearless little girl you see suffers in a world of silenceContinue reading “It’sNotThatEasy.”
When I started blogging around my daughters disabilities, I made myself become open to questions. One struck me yesterday and it’s still on my mind. ‘How do you cope taking Alivia out with her brothers and is it hard to cope with?’ The intention of my blog was to be as real, honest and raw.Continue reading “Honesty.”
As her warm hand swayed with mine and Daddy’s down the steps to theatre, she showed no signs of anxiety, anticipation or apprehension of where the nurse in pink was leading us to. I wanted to express my anxiety and share with you how it truly feels when your child is under General anaesthetic. IContinue reading “AssessmentsBegin”