Category Archives: Uncategorized

Autumn. I know for most people, Christmas is the most wonderful time of the year. Unpopular opinion, but I believe as an Autumn baby, Autumn is my most wonderful time of the year. There’s something specially welcoming when summer falls, as the sun allows itself to set back, which enhances natures truest form of glisteningContinue reading “Pumpkin Picking”

I think it’s easy to forget just how intense hospital appointments, examinations or assessments can be for young children. White daunting clinical rooms, medical professionals look barely recognisable due to COVID19 PPE, the once smiley welcoming faces are covered by blue masks. The buzz and hustle of the hospital corridors, patients whizz past wheeled inContinue reading “Vitamin Sea.”

To our precious little fox, on your third Birthday. The fizz and excitement was unreal, the morning I popped my surgical socks and gown on. Although I’d been here twice before, the butterflies twist and danced in my belly, or that was your gentle kick of reminder that today was the day, I’d finally holdContinue reading “A Letter To Parker”

We last left you with the amazing news of Livy being put forward to the Multidisciplinary Team Meeting following from her most recent appointment where both of Livy’s ears, hearing test results met the criteria for the Cochlear Implants along with the functionality assessment. We have some further exciting news to share with you… LIVYContinue reading “Save The Date.”

We have N e w s for you!! Today we attended Addenbrookes, for the final stage of the Cochlear Implant Assessment process. After 3 variations of hearing tests, firstly a Tympanometry is performed to see how flexible the ear drum is, this was good. Then Livy had a Bone Conduction test, a small device isContinue reading “Cochlear Implant Assessment pt 2”

“ I have been wondering about 3 words you might use to describe A and things you admire about A” – Educational psychologist. This chapter explores the depths of the trials and tribulations of getting our daughter, livy a EHC Plan. Due to Livy’s extremely rare genetic syndrome and complex needs, as parents we feelContinue reading “Trials & Tribulations of a EHCP.”

To the parents that are battling for their child/children with disabilities day in day out, who often are left exhausted leaving little time or energy to care for themselves, increasingly aware of the isolation that begins to suffocate around them. I’ve never met a strong person with an easy past, whilst we’re left feeling helplessContinue reading “Believe In Yourself.”

Why we need face masks with visible panels for our Deaf and Hard of Hearing community. As England was delivered with the mandatory requirement to wear a face covering in shops and supermarkets, I can only imagine people of the deaf community tried to hopelessly swallow the lump that formed in their throat. Since COVID-19,Continue reading “Open letter.”

The only way I can describe deafness is being claustrophobic, you cannot escape the walls compressing the ability to hear. As anxiety crawls through your system like adrenaline, you feel trapped as the enclosed walls drown the sound you used to be able to hear. No longer can you breathe deeply and hear you’re voiceContinue reading “Deafness.”

Two BunBuns in hand and her backpack in the other, our confident, yet defiant daughter made her way to the car. Naturally, with such little awareness or understanding of where she was going. We made the short 55 minute journey to Cambridge, Addenbrooke’s Hospital. 4 years since Livy failed the newborn hearing screening, which pursuedContinue reading “Cochlear Journey Begins.”